Mersin Milletvekili G\u00fclcan K\u0131\u015f, SMA hastalar\u0131n\u0131 ve sorunlar\u0131n\u0131 TBMM g\u00fcndemine ta\u015f\u0131d\u0131.<\/p>\n
T\u00fcrkiye’de SMA’l\u0131 bebekler ve ailelerinin ya\u015fad\u0131klar\u0131 s\u0131k\u0131nt\u0131lar\u0131n ve sorunlar\u0131n acilen \u00e7\u00f6z\u00fclmesi gerekti\u011fini vurgulayan K\u0131\u015f, AKP iktidar\u0131na \u00e7a\u011fr\u0131 yapt\u0131.<\/p>\n
TBMM Genel Kurulu’nda s\u00f6z alan CHP’li K\u0131\u015f, SMA’n\u0131n \u00fclkemizde aileler eliyle ve yard\u0131m kampanyalar\u0131 ile y\u00fcr\u00fcyen, acil \u00e7\u00f6z\u00fcm bekleyen bir hastal\u0131k oldu\u011funu belirtti.<\/p>\n
T\u00fcrkiye’de sosyal medyadan en aktif y\u00fcr\u00fct\u00fclen kampanyalardan birinin SMA kampanyas\u0131 oldu\u011funu ifade eden K\u0131\u015f, umutlar\u0131 t\u00fckenen ailelerin seslerini duyurma ve ba\u011f\u0131\u015f m\u00fccadelesi verdiklerini belirtti.<\/p>\n
Konunun devlet d\u00fczeyinde, iktidar\u0131n alaca\u011f\u0131 kararla \u00e7\u00f6z\u00fclmesi gerekti\u011fine vurgu yapan K\u0131\u015f, SMA hastas\u0131 bebeklerin ve ailelerinin kaybedecek bir saniyeleri bile olmad\u0131\u011f\u0131n\u0131 ifade etti. Tedavisi \u00e7ok pahal\u0131 olan SMA hastal\u0131\u011f\u0131n\u0131 ailelerin tek ba\u015f\u0131na kar\u015f\u0131lamas\u0131n\u0131n m\u00fcmk\u00fcn olmad\u0131\u011f\u0131na dikkat \u00e7eken K\u0131\u015f, Sa\u011fl\u0131k Bakan\u0131’na seslendi ve \u015funlar\u0131 s\u00f6yledi:<\/p>\n
“Mersin’de, B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131m\u0131z\u0131n \u00e7a\u011fr\u0131s\u0131 ile CHP’li 7 \u0130l\u00e7e Belediyemiz ‘Birlikte Ba\u015faral\u0131m, SMA’l\u0131 \u00c7ocuklara Umut Olal\u0131m’ kampanyas\u0131 ba\u015flatm\u0131\u015flard\u0131r. Bir\u00e7ok aileye de umut olmu\u015flard\u0131r.<\/p>\n
Sa\u011fl\u0131k Bakan\u0131 “ailelerin umutlar\u0131n\u0131n ticari ama\u00e7lara alet edilmesine izin vermeyece\u011fiz” demektedir. Ancak, her ay topland\u0131\u011f\u0131 iddia edilen “SMA Bilim Kurulu”; en son Ocak 2023’te toplanm\u0131\u015f ve son kamuoyu a\u00e7\u0131klamas\u0131n\u0131 o zaman yapm\u0131\u015ft\u0131r. \u00dclkemizde, SMA tedavisi ve y\u00f6ntemleri \u00fczerine bu bilim kurulunda, hangi kararlar al\u0131nm\u0131\u015f, hangi tedavi y\u00f6ntemlerinde uzla\u015f\u0131lm\u0131\u015f, hi\u00e7biri bilinmemektedir. Ailelerle g\u00fcncel veriler payla\u015f\u0131lmamaktad\u0131r.”<\/p>\n
TBMM Genel Kurulu’ndan Sa\u011fl\u0131k Bakan\u0131’na \u00e7a\u011fr\u0131 yapan K\u0131\u015f, “muhalefetiyle iktidar\u0131yla SMA’l\u0131 \u00e7ocuklara umut olal\u0131m hasta yavrular\u0131m\u0131z\u0131 bir an evvel kurtaral\u0131m” dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
Mersin Milletvekili G\u00fclcan K\u0131\u015f, SMA hastalar\u0131n\u0131 ve sorunlar\u0131n\u0131 TBMM g\u00fcndemine ta\u015f\u0131d\u0131. T\u00fcrkiye’de SMA’l\u0131 bebekler ve ailelerinin ya\u015fad\u0131klar\u0131 s\u0131k\u0131nt\u0131lar\u0131n ve sorunlar\u0131n acilen \u00e7\u00f6z\u00fclmesi gerekti\u011fini vurgulayan K\u0131\u015f, AKP iktidar\u0131na \u00e7a\u011fr\u0131 yapt\u0131. TBMM Genel Kurulu’nda s\u00f6z alan CHP’li K\u0131\u015f, SMA’n\u0131n \u00fclkemizde aileler eliyle ve yard\u0131m kampanyalar\u0131 ile y\u00fcr\u00fcyen, acil \u00e7\u00f6z\u00fcm bekleyen bir hastal\u0131k oldu\u011funu belirtti. T\u00fcrkiye’de sosyal medyadan […]<\/p>\n","protected":false},"author":2,"featured_media":33060,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,6],"tags":[],"class_list":["post-33059","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-manset","category-siyaset-2"],"views":2,"_links":{"self":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/33059"}],"collection":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=33059"}],"version-history":[{"count":0,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/33059\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/media\/33060"}],"wp:attachment":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=33059"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=33059"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=33059"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}