CHP Mersin Milletvekili G\u00fclcan K\u0131\u015f, TBMM Genel Kurulu’nda yapt\u0131\u011f\u0131 konu\u015fmada Duchenne Musk\u00fcler Distrofi (DMD) hastas\u0131 \u00e7ocuklar\u0131n ve ailelerinin ya\u015fad\u0131\u011f\u0131 \u00e7aresizli\u011fi g\u00fcndeme ta\u015f\u0131d\u0131. T\u00fcrkiye genelinde DMD hastal\u0131\u011f\u0131yla m\u00fccadele eden ailelerin \u00e7ocuklar\u0131n\u0131n tedavisi i\u00e7in stant a\u00e7t\u0131\u011f\u0131n\u0131, afi\u015f bast\u0131rd\u0131\u011f\u0131n\u0131 ve sosyal medya \u00fczerinden ba\u011f\u0131\u015f toplamak zorunda b\u0131rak\u0131ld\u0131\u011f\u0131n\u0131 hat\u0131rlatan G\u00fclcan K\u0131\u015f, bu tabloyu “T\u00fcrkiye’de sa\u011fl\u0131k sisteminin ba\u015far\u0131s\u0131zl\u0131\u011f\u0131n\u0131n ve \u00e7aresizli\u011fin ac\u0131 bir itiraf\u0131” olarak nitelendirdi.<\/p>\n\n\n\n
“Anneler, babalar \u00e7ocuklar\u0131n\u0131n ya\u015fam hakk\u0131 i\u00e7in sokak sokak stant a\u00e7\u0131yor, sosyal medyadan yard\u0131m istiyor. Oysa bir sosyal devlette \u00e7ocuklar\u0131n ya\u015fam hakk\u0131 vicdanlara b\u0131rak\u0131lmaz, sosyal politikalara emanet edilir” diyen K\u0131\u015f, daha \u00f6nce SMA hastalar\u0131 i\u00e7in ya\u015fanan \u00e7\u0131kmaz\u0131 hat\u0131rlatarak, benzer bir \u00e7aresizli\u011fin bug\u00fcn DMD hastas\u0131 \u00e7ocuklar i\u00e7in tekrarland\u0131\u011f\u0131n\u0131 vurgulad\u0131.<\/p>\n\n\n\n
“E\u011fer bu gen tedavisi etkili ve g\u00fcvenliyse neden devlet g\u00fcvencesinde uygulanm\u0131yor? G\u00fcvenilir de\u011filse neden bu ba\u011f\u0131\u015f kampanyalar\u0131na g\u00f6z yumuluyor? H\u00fck\u00fcmete bu sorular\u0131 a\u00e7\u0131k\u00e7a soruyorum”<\/strong> ifadelerini kullanan CHP’li G\u00fclcan K\u0131\u015f, sa\u011fl\u0131k politikalar\u0131nda ya\u015fanan \u00e7eli\u015fkilere dikkat \u00e7ekti.<\/p>\n\n\n\n G\u00fclcan K\u0131\u015f, devletin vatanda\u015f\u0131n\u0131 koruma y\u00fck\u00fcml\u00fcl\u00fc\u011f\u00fcn\u00fc hat\u0131rlatarak, “\u00c7ocuklar\u0131m\u0131z\u0131n ya\u015fam hakk\u0131 halk\u0131n vicdan\u0131na de\u011fil, devletin sosyal politikalar\u0131na emanet edilmelidir. Sosyal devlet olmak bunu gerektirir. T\u00fcrkiye Cumhuriyeti vatanda\u015f\u0131n\u0131, hele ki bir \u00e7ocu\u011fu tedavisi i\u00e7in ba\u011f\u0131\u015f kampanyalar\u0131na mecbur b\u0131rakamaz”<\/strong> dedi.<\/p>\n\n\n\n CHP Mersin Milletvekili G\u00fclcan K\u0131\u015f, konu\u015fmas\u0131n\u0131 \u015fu \u00e7a\u011fr\u0131yla tamamlad\u0131:<\/p>\n\n\n\n “Madem bug\u00fcn sa\u011fl\u0131kla ilgili d\u00fczenlemeleri konu\u015fuyoruz, gelin, hep birlikte ortak bir \u00f6nerge verelim. DMD’li \u00e7ocuklar\u0131m\u0131z\u0131n ya\u015fad\u0131\u011f\u0131 bu \u00e7aresizli\u011fi ortadan kald\u0131rmak i\u00e7in hep birlikte sorumluluk alal\u0131m. \u00c7ocuklar\u0131m\u0131z i\u00e7in ad\u0131m atal\u0131m, bu sorunu siyasetin de\u011fil insanl\u0131\u011f\u0131n meselesi olarak g\u00f6relim.”<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":" CHP Mersin Milletvekili G\u00fclcan K\u0131\u015f, TBMM Genel Kurulu’nda yapt\u0131\u011f\u0131 konu\u015fmada Duchenne Musk\u00fcler Distrofi (DMD) hastas\u0131 \u00e7ocuklar\u0131n ve ailelerinin ya\u015fad\u0131\u011f\u0131 \u00e7aresizli\u011fi g\u00fcndeme ta\u015f\u0131d\u0131. T\u00fcrkiye genelinde DMD hastal\u0131\u011f\u0131yla m\u00fccadele eden ailelerin \u00e7ocuklar\u0131n\u0131n tedavisi i\u00e7in stant a\u00e7t\u0131\u011f\u0131n\u0131, afi\u015f bast\u0131rd\u0131\u011f\u0131n\u0131 ve sosyal medya \u00fczerinden ba\u011f\u0131\u015f toplamak zorunda b\u0131rak\u0131ld\u0131\u011f\u0131n\u0131 hat\u0131rlatan G\u00fclcan K\u0131\u015f, bu tabloyu “T\u00fcrkiye’de sa\u011fl\u0131k sisteminin ba\u015far\u0131s\u0131zl\u0131\u011f\u0131n\u0131n ve \u00e7aresizli\u011fin […]<\/p>\n","protected":false},"author":2,"featured_media":44130,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"class_list":["post-44573","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-manset"],"views":5,"_links":{"self":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/44573"}],"collection":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=44573"}],"version-history":[{"count":1,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/44573\/revisions"}],"predecessor-version":[{"id":44574,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/44573\/revisions\/44574"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=\/wp\/v2\/media\/44130"}],"wp:attachment":[{"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=44573"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=44573"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mersinkadingazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=44573"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}